We need everybody’s opinion, we need everybody’s help in mobilising support, to drive forward an agenda that is favourable, for hearing impaired patients, especially those for whom cochlear implantation may be appropriate. And who at the present time are denied that intervention.Globally, we all have to unite to do this work, and to make sure that the interventions for hearing impairment are more readily available, for the millions of people who at the present time are denied it.
WE NEED YOUR HELP. IT'S A TEAM EFFORT
Professor Gerard O’ Donoghue, steering committee member of the Consensus Delphi Process and Professor of Otology and Neurotology, University of Nottingham, UK.
ABOUT ADULT HEARING
Adult Hearing is a professional education platform that aims to increase awareness via the latest clinical evidence to reach an agreed standard of care for adults with hearing loss.
The site is formed in collaboration with members of the Delphi Consensus Group as well as the Consumer and Professional Advocacy Committee.
Purpose of Adult Hearing
Improve access to cochlear implants for people with hearing loss and educate and empower hearing health practitioners to identify and treat CI candidates.
- Provide an interface to keep professionals up-to-date with scientific information and best practice examples for treating adult hearing loss.
- Advance cochlear implant therapy as a sustainable counselling option, increasing the likelihood that a CI candidate will be evaluated by a specialist.
- Create an online platform to provide access to continuous learning opportunities and enable community engagement, leading to increased awareness and confidence in CI solutions.
THE IMPORTANCE OF ADVOCACY
Robert Mandara, 1st Vice President from the European Association of Cochlear Implant Users (EURO-CIU), talks to us about his journey with hearing loss, EURO-CIU’s function, as well as their position as it relates to bilateral cochlear implantation
Listen to Leo De Raeve, Director ONICI and Scientific Adviser to the board of European Association of Cochlear Implant Users (EUROCIU) discuss the Consumer and Professional Advocacy Committee and its objectives.
Barbara Kelley, Executive Director of the Hearing Loss Association of America, explains the role of HLAA and the significance of the Consensus paper in addressing hearing loss in adults.
Listen to Leo De Raeve, one of the Consumer and Professional Advocacy Committee members, discuss the EUROCIU and its objectives.
Barbara Kelley, Executive Director of the Hearing Loss Association of America explains the function and purpose of the HLAA as well as some of the challenges faced currently within the community.
Professor Milan Profant explains the purpose of IFOS and talks through the challenges and necessary steps required to address change. Professor Profant is Secretary General of the International Federation of Otorhinolaryngological Societies (IFOS) and based at the University Hospital in Bratislava, Slovakia.
COCHLEAR IMPLANT INTERNATIONAL COMMUNITY OF ACTION (CIICA)
What is CIICA?
We are delighted to welcome the launch of the Cochlear Implant (CI) International Community of Action (CIICA) – a new and innovative community of organisations, individuals and experts sharing the vision of increasing access to cochlear implants, and lifelong support for those who benefit from them.
The issue addressed by CIICA is the massive gap between those who could potentially benefit from CIs and those who have them: only 5-10% of those in developed nations with severe to profound deafness and hearing loss have a CI, in spite of the benefits to individual and society being well-proven, including the cost-effectiveness.
To address the gap in CI provision and long-term support, CIICA provides a new way of working for CI advocacy groups, bringing them together with opportunities to exploit the synergy between them.
What is the aim of CIICA?
Led by users and family groups, working closely with professional organisations, experts in the field of CI and other stakeholders, CIICA will:
- Increase access to the provision of CI and lifelong services globally
- Develop a global community of CI advocacy groups, with opportunities to share activities and resources and collaborate to strengthen the user and family voice
- Provide CI advocates with the tools for change they need to increase access to CI services
Learn more at www.ciicanet.org
UPCOMING CIICA EVENTS
There are no upcoming events at this time.